Ung Med MS-
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Tjena, has anyone got letter from Centrum för neurologi about future treatments with Mabthera/Rituximab? Now the treatment will be given between 12-24 months (it depends how many doses you received before). I was wondering why is it ok now to get treatment every year or two years and before it was every 6 months? Tack
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Yes, I’ve got 3 dose Mabthera, last was after the pregnancy ( 6 months after) but I was feeling great. All the blood results were perfect but because it was long period without medicine doctor told me to take. And that is why I do not understand why is now ok to be long period without medicine??
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Hi @Lela and welcome to Ung med MS!
They have posponed almost all Mabthera infusions due to Covid-19. There is quite a lot written about this (in Swedush) in the Corona-thread: https://ungmedms.com/topic/coronaviruset/
I reccomend google translating it if you need to: https://translate.google.com/translate?hl=en&sl=sv&tl=en&u=https%3A%2F%2Fungmedms.com%2Ftopic%2Fcoronaviruset%2FA short summary is that Mabthera has been proven to have a long term protection lasting much longer than the standard 6 month infusion interval. That’s why they have changed the infusion frequency, at least temporary.
If you feel worried, just call the clinic and remember that we’re always here for you as well. 🙂
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Hej,
I’ve got again letter about testing for the antibodies for Covid-19 from neurology center because I am in CombatMs studien. In the letter if I understood correctly they changed decisions about medicine. They want to continue with Mabthera every 6 months again? Now I do not understand why they changed decision?
Tack-
I think that’s because neurologists are learning more and more about Covid-19 and various MS medications. Early data shows that MS patients seems to be underrepresented in the ICU. Rheumatologists seems to use Mabtherasom as usual.
I recently received Rituximab (biosimilar to Mabthera) and do not feel the least bit worried after about increased risk for severe Covid-19.
But … feel free to ask COMBAT-MS. Because I’m very curious about what they say.
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I took Mabthera september 2017. I haven’t taken any medication since then and I haven’t had any episodes nor felt sick. I feel completely normal.
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@ebbahbl so you do not take Mabthera every six- eight months?
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No I don’t. I used to take it Twice per year but I got major complications because of it, therefore I Will change medications but at the moment i guess mabthera is still protecting me from Episodes of MS.
I don’t mean to Scare anyone by telling you about my complications, mabthera is a great medication, just not for me.
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